My name is S.! I am sure you’re wondering what the purpose of this blog is.

I am too, so you’re not alone, I promise.

I started this little journal a few years back, to explore my own thoughts and feelings regarding the challenges of life. Through this blog, I have discovered so much about myself and I have learned so much about the meaning of empathy, compassion and love.

I am a twenty-three year old zebra, with multi-morbid conditions – Ehlers-Danlos Syndrome, postural orthostatic tachycardia and Chiari 1 malformation. Unfortunately, that means I have often blog about the grief of chronic illness, challenges of ableism and more.

Please note this is a personal blog. I tend to leave out names to protect the privacy of friends and family, as this blog is linked to my Facebook. Everything here is written is merely my opinion, or is written for purely educational purposes.

I am not a doctor. Everything written in the contents of this blog is for educational, personal and awareness purposes only. If you suspect you are ill, I urge you to seek medical attention with your primary care doctor, or local ER/A&E.



2 thoughts on “About”

  1. I applaud you, for being you. My daughter, 19, is also like you, same conditions plus some. She wants to do and be. She is a sophmore in college and wants to make a difference with chronically ill people. Thank you for being another strength in this mean world. You Rock.

    1. Hi Kim.
      Thank you for your comment. I can only imagine your daughter to be a wonderful light in your life. I am sorry she experiences chronic illness as well, it is not an easy thing to witness or live with. I applaud her desire to incite change in a very broken community. If there is anything I can do, or if she would like to talk, I am always here. Similarly, I am here if you ever need to chat. The world is not kind to those of us who are sick. But we can be kind to each other.


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