Illness Army: “Litany of Positivity Porn”

My post “Litany of Positivity Porn” has now been featured as a part of the Illness Army on Indisposed and Undiagnosed!

Indisposed and Undiagnosed

All that negative stuff isn’t healthy. You just need to move on. You just need to think positively. You need to stop perceiving that darkness. Maybe you should pray to god. I don’t know why it’s like that, but there are people worse off. You’re not the only person like this, you know. I don’t know why you’re being so dramatic. I’m sorry I can’t handle all your sadness anymore. At least it isn’t cancer. You can still walk though. Why do you always talk about this? Why can’t you just talk about happier stuff? You should get out more. You should exercise more. Buck up, it’s not that bad. You just need to pull yourself up by your boostraps. You’re fine. Stop worrying. Maybe you need a vacation. When are you going to just let it go?

Stop.

But they mean well, you should just appreciate their positive thoughts…

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Pain and Ehlers-Danlos Syndrome (EDS): A Guide

This is one of the most excellent and thorough explanations of the realities of living with Ehlers-Danlos and chronic pain.

Joint Issues

Why Write About Pain?

Well, the answer is obvious to fellow Ehlers-Danlos Syndrome (EDS), Joint Hypermobility Syndrome (JHS), and others who have a heritable connective tissue disorder or chronic pain syndrome. Pain is debilitating. Pain can permeate many aspects of our lives. Pain can change the course our life takes and cause long-term psychological effects. We all deal with chronic pain in a way that we tailor to our individual circumstances.

My hope is that this article helps you to find your own path for dealing with your individual pain and to encourage you to make informed decisions and ask questions when something isn’t working for you. As patients, sometimes we need to be our own advocates. We need to speak up for ourselves.

In order to be heard, sometimes it is necessary to understand how the doctor views a patient who comes in with chronic pain. What questions should…

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So, starting a blog…

Yup. Starting a blog. I don’t really know how to do this yet, but I suppose I need somewhere to put my thoughts down. Somewhere I can look back in a year, or five and think about how much I’ve progressed in my life. Also, this is a much healthier way to vent about problems then at my friends. So I guess, I’ll start by writing a bit about myself.

I. Am. S.

I’m 19 years old, and married. I married last December, four days before finishing chemotherapy. That week was likely the best week of my life and probably will be for a long time. I was on chemotherapy for liver disease that I inherited from my biological mother who also happened to be a drug addict. I say biological mother because before I was two, I was adopted. It’s not really been an issue for me though, being adopted. I never really thought much about it to be honest, at least not until I was diagnosed. And then I will admit I was a bit angry, angry at some woman I’ve never even met for jeopardizing my life so selfishly. Anyways, currently I am living in Alaska with my husband who is military. He is in the Air Force; his job is maintenance for jets. I’m studying computer science in university. I’m sort of a huge nerd. I love video games, computers, writing, programming and graphics. We’re all nerds though, aren’t we?

I have two cats and a puppy. Mister Kitty, Sgt. Cooper and Serenity.

Cat

We adopted him from the shelter. He was our first baby.

Cat

We saved him from being dumped into the pound.

Puppy

She’s almost six weeks old now.

My husband and pets are some of the most important things in my life. I have two best friends, which I may refer to as C. and K. at some point in my blog. They are the greatest people in my life, aside from my husband. They keep me in line, support me, love me, and yell at me when need be. I’d be lost without them in my life. I’m thankful that they are accepting and caring as they are. Also they make me laugh a lot. Which is totes a plus for me. Laughing is good for you, but sometimes I lol so hard I cry. I’d milk that shit till the cow falls over though, so whatever. ;D

So, that’s me. ‘Til next time.

S.

P.S. Remember, strap your shoes on and run that mile.